Today is Annabel's 4 week birthday and she got to meet her 4th doctor, a geneticist in Ft. Worth. Her name is Dr. Kukolich and she's been a doctor for 33 years. We liked her quite a bit and was one of the first doctors to treat Annabel as an individual instead of lumping her in a generic category of Trisomy 18 babies.
The importance of seeing the geneticist is that she's ultimately laying the groundwork for the course of treatment we're going to pursue for Annabel. Basically, she's letting the cardiologist know that indeed Annabel is tracking better than many other babies with T18 and that although surgical intervention would not be recommended now, it may be the right thing to do down the road and that definitely medications should be given if breathing problems pop up. Dr. K said that outwardly, Annabel appears very healthy and that as parents, we're doing a great job of caring for her.
Carrie and I are very realistic about what to expect, but the fact remains that Annabel is still here with us and she deserves the best course of treatment so long as it improves HER level of comfort. As parents, we are still committed to putting her first, and us second.
Tonight we're going to enjoy homemade sno cones in celebration of Annabel's 4 week birthday. We love you, baby.
Mom and Dad