tag:blogger.com,1999:blog-2547929367386219440.post7847685742536858062..comments2023-10-29T10:33:56.670-05:00Comments on Annabel Leigh Villadiego: Stinky Bizzzzzy Bee!Jorge and Carriehttp://www.blogger.com/profile/02680560756169349927noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2547929367386219440.post-13746498886044828952012-02-14T20:42:57.444-06:002012-02-14T20:42:57.444-06:00I couldn't locate the video on you tube. I wen...I couldn't locate the video on you tube. I went under both names that you mentioned. Let me know if it is under something else.Cathyhttps://www.blogger.com/profile/00725698005835278265noreply@blogger.comtag:blogger.com,1999:blog-2547929367386219440.post-90348075059654135462012-02-11T09:18:21.886-06:002012-02-11T09:18:21.886-06:00Hey Cathy, sure thing! I'll send you info on ...Hey Cathy, sure thing! I'll send you info on our feeding adaptors and I'll send you the seizure videos via email!Jorge and Carriehttps://www.blogger.com/profile/02680560756169349927noreply@blogger.comtag:blogger.com,1999:blog-2547929367386219440.post-91965648102955838852012-02-09T21:29:42.680-06:002012-02-09T21:29:42.680-06:00Forgot to post this. Annabel has been on Erythromy...Forgot to post this. Annabel has been on Erythromycin twice but caused her more discomfort than help. She has also been on augmentin for motility, which didn't help either. Then they placed her on cyproheptadine (sp.) for the gagging/retching/vomitting and we thought it helped for a little bit but them realized it wasn't. She is now on Domperidone and it is giving her so much discomfort that we can't even get all her feeds in. (our goal is to be on total feed and no TPN if possible). So just Tuesday night we discontinued the domperidone after a month of many sleepless nights, also more vomiting, distention, and very elevated liver enzymes.etc.<br />I also wanted to ask you about the videos showing seizure activity. Would you mind sending them via my email, if you aren't comfortable posting them on the blog. Annabel has had siezure like activity and our nurses are sure they have seen them but not very often.What appears to be seizures are very short and I didn't think of catching them via my phone to show the doctor. We keep diastat in the fridge. We do know that when Annabel gets septic she has very prolonged seizures but by then we are at hospital. If you are not comfortable showing them to me, I do understand. Thank you again for sharing information that is helpful to our Trisomy world....Cathyhttps://www.blogger.com/profile/00725698005835278265noreply@blogger.comtag:blogger.com,1999:blog-2547929367386219440.post-86276525984901585972012-02-09T21:21:38.514-06:002012-02-09T21:21:38.514-06:00I love the pictures...thank you for posting. It is...I love the pictures...thank you for posting. It is all good to know what equipment is out there. We are struggling with Annabel's button. She has the mini-one non-balloon button. Your feeding extention is different and I was wondering if you would mind telling me the brand of the button and the feeding extention with the blue piece on the end. It hurst Annabel right when they are removing the button and then again on insertion of the new button. Thank you for letting us know you had an update via facebook.Cathyhttps://www.blogger.com/profile/00725698005835278265noreply@blogger.comtag:blogger.com,1999:blog-2547929367386219440.post-34368292288233442202012-02-09T18:52:44.552-06:002012-02-09T18:52:44.552-06:00Awww, she's such a happy baby!!!
She looks lik...Awww, she's such a happy baby!!!<br />She looks like she's putting on some weight too! Look at that cute Ross double chin!! haha. Give her a kiss for me! (and Ava too, of course!!)i said someday....https://www.blogger.com/profile/02636824881911175668noreply@blogger.com