Annabel Leigh Villadiego: 2 month birthday present from our Congressman

Thursday, July 9, 2009

2 month birthday present from our Congressman

We wanted to do something special for Annabel's 2 month birthday, so about a month ago I wrote my congressman, Kenny Marchant, and requested that he fly a flag over the US Capitol on June 30th, 2009 in honor of her 2 months with us. I never heard anything back so I wasn't sure if they were able to accommodate my request, but today Carrie called me a work to say we got a certificate AND the flag in the mail. We were very excited and told Annabel all about it. Check out the certificate and the size of that flag!

6 comments:

CynPolJuly 9, 2009 at 6:57 PM
Oh my gosh....our little baby has done so much in her short life. What a true American girl she is. Ah sweet Annabel you really ring our bell. We love you sweet baby so much.
Meemaw and Pawpaw
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veronicaJuly 9, 2009 at 7:43 PM
Amazing!!!! My how you have been through alot in 2 months..We love you Annabel
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CathyJuly 9, 2009 at 9:57 PM
Wow, you have some pull! That is so nice what they did for your sweet Annabel.
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Tiffany RoblesJuly 9, 2009 at 10:16 PM
Thts sooo incredible!!!!!!!!! Who wouldnt want to honor such an inspiring little girl!! So tiny, yet accomplishing soo much.. were soo proud of u baby!!! we love u soo much nd kno tht we are constantly thinkin abt u..u are such a blessing, may God Almighty bless u forever!!!
we love u!!
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NicJuly 9, 2009 at 11:43 PM
Such an important gift for such an important little Girl! I am not surprised in the least! Your sweet little girl has the power to move mountains and touch hearts and minds.

I just love your little Angel!
Love and prayers from California,
Nichole
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RebeccaJuly 10, 2009 at 9:02 AM
Wow! What a neat gift for baby Annabel! Amazing how such a little person can touch so many lives, isn't it?!
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About Annabel

Our beautiful daughter Annabel was diagnosed with Trisomy 18 (Edwards Syndrome) 4 days after her birth. By no means has this been easy. We've had to say "goodbye" to the life we imagined with our first child while accepting the reality that the time with our daughter will be far too short. Despite it all, we love our little angel more than words can describe and our goal is to provide her with comfort and love and appreciate every moment we can spend with her.

Thank you for visiting her site and please continue to keep her in your thoughts and prayers.

Background on Trisomy 18

Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy.

Unlike Down syndrome, which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. 50% of babies who are carried to term will be stillborn, with baby boys having higher stillbirth rate than baby girls.

At birth, intensive care admissions in Neonatal units are most common for infants with Trisomy 18. Again, baby boys will experience higher mortality rates in this neonatal period than baby girls, although those with higher birth weights do better across all categories.

Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community. A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independantly without assisted caregiving.

-www.trisomy18.org

Annabel Leigh Villadiego

Thursday, July 9, 2009

2 month birthday present from our Congressman

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