Jacob later emailed me these photos he took of Annabel and I thought I would share them as they are very nice.
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The moon never beams without bringing me dreams of the beautiful Annabel Leigh
Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy.
Unlike Down syndrome, which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. 50% of babies who are carried to term will be stillborn, with baby boys having higher stillbirth rate than baby girls.
At birth, intensive care admissions in Neonatal units are most common for infants with Trisomy 18. Again, baby boys will experience higher mortality rates in this neonatal period than baby girls, although those with higher birth weights do better across all categories.
Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community. A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independantly without assisted caregiving.
-www.trisomy18.org
these pics are beautiful!!! we love u baby annabel <3
ReplyDeletegood for you! i'm sure you two need a little bit of alone time. you picked some excellent babysitters! hugs to you all!
ReplyDeleteyour baby girl is absolutely precious!! we will be praying for you all during your journey.
ReplyDeletei read your post about dr. k.. she is my sons geneticist as well and we too love her!! she is very open and honest and most knowledgeable when it comes to rare disorders
take care!
Hi!
ReplyDeleteI am a first time commenter. "Found" you through Cathy, mom of Annabel Grace.
Jorge and Carrie your little Annabel Leigh is so beautiful!
Will be praying for you and checking in to hear and see how your little Annabel is doing.
Kathy
Adorable :>)
ReplyDeleteWow, a babysittin' toting photographer! Can you make your way down to S.E. Texas. I am really here to say we are praying for your sweet Annabel and love hearing the updates. Keep on going lil one!
ReplyDeleteHey Jorge and Carrie! And congratulations on a beautiful daughter.
ReplyDeleteJorge, you may or may not remember meeting me at the 10 year HS reunion. I'm Curtis' wife, Kierstyn.
Know that our thoughts and prayers are with you. Annabel is such a sweetie!
Thank you for sharing your beautiful daughter with us. Our family will keep you in our prayers.
ReplyDelete