Tuesday, June 2, 2009
I miss my wife and daughter
This is my 3rd week back at work and it hasn't gotten any easier being away from Annabel and my wife. I miss them terribly while I'm gone. I am kind of a control freak by nature, so not being there knowing what is going on is a nightmare for me and I am positive I get on my wife's nerves by calling so much throughout the day :)
Annabel has been doing so good and her 2am fussy spells are tailing off a bit and they've turned into 6am fussy spells. We're hoping this will allow for better sleep at night.
As for her overall health, the only additional thing we've noticed is what sounds like nasal congestion. It happens at night and into the early morning and we're keeping a close eye on it. We will be asking the pediatrician on Thursday if it's any cause for concern.
Oh, and a wonderful mom of a T18 baby in New York sent us dozens of enternal feeding tubes that are ideal for pediatric patients. The ones we have on hand are too long and get caught up in her clothes, arms and even her feet! We're excited to switch it out tomorrow when nurse Kerri comes back to visit Annabel. Then on June 11, we have our first appointment with the feeding therapist to work on building up Annabel's stamina for bottle feeding.
I'll be updating the blog tonight with some pictures from over the weekend and some of the photos taken by Tess Teeter, the volunteer Hospice photographer.