Annabel just loves her new dress. Thank you, Chris and Janna!
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The moon never beams without bringing me dreams of the beautiful Annabel Leigh
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About Annabel
Our beautiful daughter Annabel was diagnosed with Trisomy 18 (Edwards Syndrome) 4 days after her birth. By no means has this been easy. We've had to say "goodbye" to the life we imagined with our first child while accepting the reality that the time with our daughter will be far too short. Despite it all, we love our little angel more than words can describe and our goal is to provide her with comfort and love and appreciate every moment we can spend with her.
Thank you for visiting her site and please continue to keep her in your thoughts and prayers.
Thank you for visiting her site and please continue to keep her in your thoughts and prayers.
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Background on Trisomy 18
Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy.
Unlike Down syndrome, which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. 50% of babies who are carried to term will be stillborn, with baby boys having higher stillbirth rate than baby girls.
At birth, intensive care admissions in Neonatal units are most common for infants with Trisomy 18. Again, baby boys will experience higher mortality rates in this neonatal period than baby girls, although those with higher birth weights do better across all categories.
Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community. A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independantly without assisted caregiving.
-www.trisomy18.org
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Blog Archive
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2009
(102)
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June
(21)
- Happy 2 month birthday, Vanilla Bean
- I can't wear pink everyday...
- Father's Day
- The many faces of Annabel
- My new dress!
- Another recording...
- Annabel's sweet cry
- Another birthday.....this time it's Dad's.
- Mommy got me some bows for my hair!
- 6 weeks old...
- More visitors
- Bath time with Daddy!
- Momma's little monkey!
- Some more...
- Photos by Tess Teter Photography
- Annabel's brother Ricky and sister Sadie got to po...
- Annabel had some additional visitors!
- Amazing
- Annabel Aid - check it out!
- Cutest. Pictures. Ever.
- I miss my wife and daughter
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June
(21)
What an angelic being.My favorite is with her lying on her side. She is just adorable. Annabel and Alexis are the favorite grand daughters.Of course they are the only ones we have. We love you baby girl.
ReplyDeleteMeemaw
that cutie gots the knobbie knees.
ReplyDeleteand chicken legs.
ReplyDeleteWhat a punkin'!
ReplyDeleteI love seeing new pictures of your beautiful baby girl! I just want to hug and kiss her!
ReplyDeleteToo cute!
ReplyDeleteWhat a cutie she is in her new dress! LOVE the hair band thing. She's got fantastic hair to use those. :) xoxox to Annabel and her Mamma and Daddy! :)
ReplyDeleteShe is so precious and I love that new dress.
ReplyDeleteAwww, that one with her all curled up is so sweet. I had to put it as my background on my computer here at work. Everyone says she is just beautiful and looking so healthy!
ReplyDeletesoooooo beautiful!!!!!!!!!!!!! look at her showin some skin nd everythin..lookin sexyy!! ;) i love u annabel!!!
ReplyDelete