Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
The moon never beams without bringing me dreams of the beautiful Annabel Leigh
Join Team Annabel on Facebook
About Annabel
Our beautiful daughter Annabel was diagnosed with Trisomy 18 (Edwards Syndrome) 4 days after her birth. By no means has this been easy. We've had to say "goodbye" to the life we imagined with our first child while accepting the reality that the time with our daughter will be far too short. Despite it all, we love our little angel more than words can describe and our goal is to provide her with comfort and love and appreciate every moment we can spend with her.
Thank you for visiting her site and please continue to keep her in your thoughts and prayers.
Thank you for visiting her site and please continue to keep her in your thoughts and prayers.
Contact
Background on Trisomy 18
Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy.
Unlike Down syndrome, which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. 50% of babies who are carried to term will be stillborn, with baby boys having higher stillbirth rate than baby girls.
At birth, intensive care admissions in Neonatal units are most common for infants with Trisomy 18. Again, baby boys will experience higher mortality rates in this neonatal period than baby girls, although those with higher birth weights do better across all categories.
Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community. A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independantly without assisted caregiving.
-www.trisomy18.org
Oh my goodness!!! She looks so different without that tube in her nose. She can really smile now. Of course Jack said you can really tell she has his dimples now. We love you little stinker!!
ReplyDeleteMeemaw and Pawpaw
What a beautiful smile she has!!! A priceless moment caught on camera. I just want to pinch her widdle cheeks!
ReplyDeleteI LOVE that smile! :) You can tell she is so happy to be tape and tube free! I totally agree with Meemaw you can really tell she has dimples now! I wanna kiss those cheeks!! So happy to hear and see she is doing good! xoxox to you all! :)
ReplyDeletePRICELESS. She is so precious and look at the joy that your baby girl is filled with. Thank you for sharing her pic and so glad that tube is out. Hope all her feedings go well. What type of feeding pump did she get. Is her button a mickey or a mini-one button.
ReplyDeleteLook how much more beautiful her sweet smile is out from under the tape.
ReplyDeleteAwhhhhhhh!!!!!!!!! So absolutely adorable...YAY no tubes!!! We love you Annabel
ReplyDeleteOh my goodness, she is so precious! What a beautiful smile!
ReplyDeleteI'm soooo happy for her! It's great to see her little face better. Love her beautiful smiles. :)
ReplyDeleteBABY ANNABEL!!!!!!! U LOOK SOOOO BEAUTIFUL BABY!!! Were soo happy for u!! we love u sooo much mama keep on smiling baby God bless u forever!!!
ReplyDelete