Annabel Leigh Villadiego

Wednesday, October 14, 2009

Little stinker gets her regular feeding again at 9 tonight. If all goes well, little one and daddy get to come home late tonight. Just thought I would share some pics that I took before the surgery and after in the hospital room during our stay. Thank you so much for the prayers and keep sending them up, please! I will be so happy to see daddy and stinker tonight, no matter how late it is!

This weekend before the surgery: Jack, Lucia and Annabel

Look, Mom! No tube and no tape!

Annabel's NEW favorite binky...vanilla flavored, yum!

6 comments:

CynPolOctober 14, 2009 at 9:14 PM
Good pics. It will be so nice to see Annabel without the tube.She loves her binky anyway but vailla flavor must be super nice.We love you little stinker!!!
Love,Meemaw and Pawpaw
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veronicaOctober 14, 2009 at 9:14 PM
Look no tubes.....yay
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NicOctober 15, 2009 at 12:32 AM
A strong little stinker she is! Godbless you sweet Annabel and your family! What ADORABLE pictures. She just melts my heart.

Prayers from California
Nichole
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Melissa HamiltonOctober 15, 2009 at 6:11 AM
I bet if feels good to have that tube out, Miss Annabel! I am glad everything went well. You are such a strong little beauty! Lots and lots of love from the midwest! We miss you guys!
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CarrieOctober 15, 2009 at 12:11 PM
I'm glad things went so well for her and hope you all made it home safe and sound. Thoughts and prayers for you all
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Melis, Jake and NoaOctober 16, 2009 at 3:06 PM
Back when I was a kid, we only had regular flavored binkies, and I had to walk uphill in the snow to get to it.
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About Annabel

Our beautiful daughter Annabel was diagnosed with Trisomy 18 (Edwards Syndrome) 4 days after her birth. By no means has this been easy. We've had to say "goodbye" to the life we imagined with our first child while accepting the reality that the time with our daughter will be far too short. Despite it all, we love our little angel more than words can describe and our goal is to provide her with comfort and love and appreciate every moment we can spend with her.

Thank you for visiting her site and please continue to keep her in your thoughts and prayers.

Background on Trisomy 18

Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy.

Unlike Down syndrome, which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. 50% of babies who are carried to term will be stillborn, with baby boys having higher stillbirth rate than baby girls.

At birth, intensive care admissions in Neonatal units are most common for infants with Trisomy 18. Again, baby boys will experience higher mortality rates in this neonatal period than baby girls, although those with higher birth weights do better across all categories.

Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community. A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independantly without assisted caregiving.

-www.trisomy18.org

Annabel Leigh Villadiego

Wednesday, October 14, 2009

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