Tuesday, December 13, 2011

Snotty Stinky

Stinky is feeling a little better but we are still suctioning snot like crazy!  We are trying our hardest to keep her well so that we can visit with family during Christmas.

In other news, Stinky has an appointment to get an EEG test on December 21st.  We are concerned that she might be having seizures.  Based on what we've read and heard, seizures are fairly common in our Trisomy 18 babies.  We've seen seizure like behavior a few times and our GI doctor said that the vomiting issue could be related.  We will keep everyone posted, of course!

In the meantime, please enjoy the pic below.  It was taken while she was eating and she was talking non stop.  Her face is so cute and animated!

Monday, November 28, 2011

A Very Happy Thanksgiving!

Happy Thanksgiving from Stinkerville!  We had a lovely time here.  MeeMaw and PawPaw arrived on Wednesday and stayed through the whole weekend!  And we were so excited when Uncle Kevin and Aunt Chasti came to visit us on Saturday.  The girls had a great time with their cousins Alexis, Ryan and Kolby.
Poor Stinky got sick a few times when our company was here.  That's nothing new, she had a good four days in a row that were vomit free.  And we are always thankful for that, by the way!  Other than that, she was a little congested but still happy and she had a great time!  But now that all of our visitors are gone, Stinky's acting like she doesn't feel too good.  She doesn't have a fever but she is very congested right now and we are on snot suction detail once again.   We will keep a close watch on her, as always.  Little Stinker, you better start feeling better soon!  Please enjoy our pics below.  We were too busy eating and playing to get more pics, sorry! 

Stinky acting silly!

It was tough trying to get a decent family photo..Stinky was too busy looking at her MeeMaw and Ava was way too fussy.  Clockwise, starting with Jorge:  Jorge, Carrie with Ava, Kolby with Ricky, Alexis, MeeMaw with Annabel, Kevin, Chasti, PawPaw and Ryan.

Great pic of PawPaw and Ava playing outside!

Wednesday, November 2, 2011

A Lovely Dress for a Lovely Girl!

This dress was handmade by Ava's Abuelita (Ita).  Ita is a very talented seamstress, don't you agree?  The dress is 16 years old!  Ava's cousin Jessie wore it when she turned one year old and her cousin Victoria wore it when she turned one year old.  Stinky was just too tiny for the dress on her 12 month birthday but we hope she will get chunky enough to wear it someday!  So it is our birthday dress family tradition...and Mimi keeps it safe and pretty at her house so it will be ready for the next little Villadiego girl!

Tuesday, November 1, 2011

Monday, October 31, 2011

Happy Halloween!

Stinky as Little Red Riding Hood!

Ava as Dallas Cowboys Cheerleader!

Sunday, October 30, 2011

1 More Day til Halloween!

Stinky Skelebones with Bubba Binky!

Ava Skelebones with Ghouly Glasses!

The Ultimate:  Stinky Skelebones with Bubba Binky AND Ghouly Glasses!

Wednesday, October 26, 2011

Stinky Laughing!

Before you watch the video, a few things:  that weird snorting/growling sound that you hear is from our dog Ricky.  When we play with him he gets very excited and that is the sound that he makes.  Annabel loves watching him though and she always laughs once he starts making that sound.  We didn't catch Ricky on video.  But try your hardest to ignore Ricky's noise and concentrate on hearing Annabel's sweet laugh.  We love it!

I apologize in advance for the shaky view.  Also, I played around with the editing tools on Youtube.  This one is called '1960s'.  I like it, it does make the video look old school.

And finally, make sure you pause our Halloween Music so you can hear her sweet laugh!

Monday, October 24, 2011

7 More Days til Halloween!

Mommy's lil' Pumpkin!

Mommy's lil' Monster Feet!

Thursday, October 20, 2011

11 More Days til Halloween!

Little Miss Stinky Spider!
Miss Stinky Spider and Little Sister!
Not sure on this one.  Ava pretending to be a spider?  This was her pose when I said, "Smile, Happy Halloween!"

Monday, October 10, 2011

The Countdown Has Begun!

21 More Days Until Halloween!

Tuesday, September 6, 2011

Summer Vacations Part 3

New York City!

The girls didn't get to go, but look at their cute NYC shirts: a gift from their Grandma Mami.

Monday, August 29, 2011

Summer Vacations Part 2

Costa Rica! Enjoy the pics below..Stinky and Ava wearing their super cute dresses from Costa Rica-a gift from their Tio Luis.

Next week: New York City!

Monday, August 22, 2011

Summer Vacations

Summer vacation? But isn't everyone 'Back to School' right now? Mostly everyone, yes! But we are still at home here in Stinkerville..our day to day activities will remain the same even though September is just around the corner. We have enjoyed a great summer but we are done with this awful heat! Most days it has been just too hot and humid to get Stinky and Ava out.

So while the girls have kept cool inside all summer, our friends and family have gone here and there and everywhere for some fun summer vacations! Each new trip results in new outfits and toys for the girls. We thought it would be fun to share some pics from each trip. This week: Hawaii. Next week...Costa Rica!

Below: Stinky and Ava in their dresses from Hawaii...gifts from their Grandma Mami.

Monday, August 15, 2011

Tummy Trouble Update

Stinky's tummy troubles continue: she is still vomiting at least once a day, sometimes two times a day, maybe four days in a row each week. She usually has a couple of days that are vomit free but then it starts all over again.
We are still feeding her at a much slower rate and she is now taking her reflux medicine twice a day. Our next step is to try a new formula and see how that goes. We will keep you posted on that once we begin the new formula!

Besides the current tummy trouble, Stinky is still hanging in there and we keep busy with our different therapy appointments and playtime. Take a look at the most recent pics below. The first two are Stinky playing with her new therapy ball: a new toy from her Occupational Therapist. The last pic is Stinky playing with her little sock monkey: a gift from her GAB.

Tuesday, July 19, 2011

Stinky and Ava

Stinky loves playing with Ava!

Monday, June 13, 2011

Stinky Swims!

And she loves it! She splished and splashed and had a great time. We've decided to add swimming to our weekly therapy activities!

Wednesday, June 8, 2011

Stop It, Stinky!

Stop throwing up, Stinky! We've had some gross vomit issues recently. Lately Annabel vomits pretty often and at different times of the day, sometimes in the morning, sometimes at night...sometimes once a day, sometimes twice a day, etc. We usually have three or four days in a row vomit free, but then she gets sick again on the fourth or fifth day. The episodes are so random and so it is hard to determine the exact cause. Is it reflux? Is it the rate the food is going in, do we need to slow it down? Is it her constant congestion? Is it because of her low muscle tone?

We went to the stomach doctor and we are trying two new things: she is taking reflux medicine and now she gets her formula fed to her over an hour. What does this mean? It means the dreaded pump is back...ayyyyy! Annabel used to eat with the pump when we first brought her home. Then after she got her G-Button we slowly started feeding her via syringe bolus feeds and she did great for a long time. With the bolus feeding, it takes maybe 15 to 20 minutes to feed her. And now with the pump feeding it takes an hour to feed her. We will check back in with the doctor in a month or so for a progress report.

It is time consuming but we don't care! As long as Stinky stops throwing up, that's all that matters! Oh, and it is quite an ordeal now that we have Ava, too. She is constantly on the move and she is always interested in her sister's feeding issues. So Mom has a hard time trying to figure the best place to put Annabel during her feeds now!

Stinky before her feed begins..

Stinky during her feeding. See the bag of formula and the pump? And the tubing connected to her and then draped over her chair? She likes to play with her piano while she eats.

And see where little Ava always ends up? She can't get to the pump or tubing and so she plays with her toys on the floor next to Annabel's chair. She had just fallen asleep next to her 'cell phone' when I took this pic.

Sunday, May 8, 2011

Happy Mother's Day!

"A mother's arms are made of tenderness and children sleep soundly in them."
-- Victor Hugo