Wednesday, August 22, 2012

Test Results Back!

Update: all tests came back normal from Stinky's esophagoscope. We take that as good news, however still no answers to the root cause of her vomiting she experiences once a day or so.

Next step is to schedule a digestion study. A radiologist will examine her stomach and intestines via X-ray while a dye makes its way through her tummy.

Waiting on more info then we will schedule the appointment.

Stinky loves a good shampoo!

Friday, August 17, 2012

Stinky's Socks

The case of the missing socks..closed! 

Wednesday, August 15, 2012

Team Annabel-Facebook!

Stinky now has a page on Facebook.  So if you're on Facebook, please Like it!

Tuesday, August 14, 2012

Stinky's Scope..Successful!

We are so happy to report that Stinky's Scope day was a success.  The GI Dr. took some biopsies during the scope and we should get results in a week or two.  He also dilated Stinky's pyloric muscle, this should help alleviate the vomiting..we hope!

Thank you all for the many kind words and prayers today:  Stinky came out of anesthesia just fine!  She did have some issues staying awake and as expected, her oxygen levels were a bit low.  They monitored her very carefully and kept us at the hospital until 2:45!  Now we are monitoring her closely at home and if she needs oxygen, we will certainly make sure she gets it.  Everything else seems good, so far.

The two pics below are before her scope and after, when she finally woke up!

Monday, August 13, 2012

Stinky's Scope!

Tomorrow is the big day!  Stinky is getting her endoscopy on her tummy tomorrow morning.  We must be at pre-registration by 6am..that's so early!  They hope to begin the procedure by 8am at the latest.

Please pray that all goes well:  the endoscopy is a common procedure and at the most lasts 45 minutes or so.  But Annabel must be anesthetized for the procedure, and that is why momma is so worried!  We pray this scope will give us some insight regarding Annabel's tummy/vomiting issues.  We will keep everyone posted tomorrow, for sure.  Until then, think of Stinky, pray with us..and look at how sweet Stinky looks, playing with her little sister:

Thursday, August 9, 2012

Music Time!

Stinky's Xylophone.  Please pay attention to the very beginning after you hit usual, she stopped playing as soon as she noticed I was recording!  :)

Wednesday, August 1, 2012

June, July..where did you go?

It is hard to believe, but the long, hot Stinky summer is almost over!  Annabel's summer school session ended last week.  Sadly, she had to miss her last week (just three days, though!) due to a summer cold that caused some nasty snots and congestion.  We did a lot of pat the back, suction the nose and breathing treatments and she is doing much better now.

She had such a great time in her summer school classes.  Now she is on holiday until the fall semester begins...on August 27th!  Take a look at some pics that her teacher sent me:

Music Time!  Teacher said that Stinky loved her piano!

Physical Therapy Time!  Stinky loves getting on the ball!

In other not-so-good news:  Stinky is still vomiting...every other day and most of the time, every day. We tried increasing the erythromycin but so far it hasn't helped much.  We have an appointment in a couple of weeks to get an EGD (scope) done.  This will allow her GI doc to take a look at her esophagus and stomach so we can figure out what's going on.  We know already that she has problems with motility and most likely reflux..again, due to her low muscle tone and the other usual T18 factors.  But we hope the scope will provide some answers!  We will keep you all posted on those details as they come.  Until then, please enjoy another pic of Stinky when she was waiting on the summer school bus!  Happily waiting!

Hey!  Do you like my new bangs?  :)