Monday, June 13, 2011

Stinky Swims!

And she loves it! She splished and splashed and had a great time. We've decided to add swimming to our weekly therapy activities!

Wednesday, June 8, 2011

Stop It, Stinky!

Stop throwing up, Stinky! We've had some gross vomit issues recently. Lately Annabel vomits pretty often and at different times of the day, sometimes in the morning, sometimes at night...sometimes once a day, sometimes twice a day, etc. We usually have three or four days in a row vomit free, but then she gets sick again on the fourth or fifth day. The episodes are so random and so it is hard to determine the exact cause. Is it reflux? Is it the rate the food is going in, do we need to slow it down? Is it her constant congestion? Is it because of her low muscle tone?

We went to the stomach doctor and we are trying two new things: she is taking reflux medicine and now she gets her formula fed to her over an hour. What does this mean? It means the dreaded pump is back...ayyyyy! Annabel used to eat with the pump when we first brought her home. Then after she got her G-Button we slowly started feeding her via syringe bolus feeds and she did great for a long time. With the bolus feeding, it takes maybe 15 to 20 minutes to feed her. And now with the pump feeding it takes an hour to feed her. We will check back in with the doctor in a month or so for a progress report.

It is time consuming but we don't care! As long as Stinky stops throwing up, that's all that matters! Oh, and it is quite an ordeal now that we have Ava, too. She is constantly on the move and she is always interested in her sister's feeding issues. So Mom has a hard time trying to figure the best place to put Annabel during her feeds now!

Stinky before her feed begins..

Stinky during her feeding. See the bag of formula and the pump? And the tubing connected to her and then draped over her chair? She likes to play with her piano while she eats.

And see where little Ava always ends up? She can't get to the pump or tubing and so she plays with her toys on the floor next to Annabel's chair. She had just fallen asleep next to her 'cell phone' when I took this pic.