Saturday, May 30, 2009

Some additional photos of Annabel

Our good friends Jacob and Melissa offered to come over and babysit Annabel for a couple of hours so that Carrie and I could go see Terminator Salvation. Though the movie was dreadful, it was a nice to go on a "date" with my wife and get out of the house.

Jacob later emailed me these photos he took of Annabel and I thought I would share them as they are very nice.

 
 
 
 
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Happy 1 month birthday, precious!

 
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Funky-town visitors

Yesterday Annabel had some more visitors. Allison and Christi came up from Ft. Worth to meet the precious Annabel and spend some time with Carrie. Thanks, you two for coming by!

 
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Thursday, May 28, 2009

4 weeks old

Today is Annabel's 4 week birthday and she got to meet her 4th doctor, a geneticist in Ft. Worth. Her name is Dr. Kukolich and she's been a doctor for 33 years. We liked her quite a bit and was one of the first doctors to treat Annabel as an individual instead of lumping her in a generic category of Trisomy 18 babies.

The importance of seeing the geneticist is that she's ultimately laying the groundwork for the course of treatment we're going to pursue for Annabel. Basically, she's letting the cardiologist know that indeed Annabel is tracking better than many other babies with T18 and that although surgical intervention would not be recommended now, it may be the right thing to do down the road and that definitely medications should be given if breathing problems pop up. Dr. K said that outwardly, Annabel appears very healthy and that as parents, we're doing a great job of caring for her.

Carrie and I are very realistic about what to expect, but the fact remains that Annabel is still here with us and she deserves the best course of treatment so long as it improves HER level of comfort. As parents, we are still committed to putting her first, and us second.

Tonight we're going to enjoy homemade sno cones in celebration of Annabel's 4 week birthday. We love you, baby.

Mom and Dad

Wednesday, May 27, 2009

Little Stinker


Annabel, the little stinker..early this morning she decided to remove her feeding tube.  She pulled it out of her nose and then rested quietly while holding it, like it was no big deal.  We called Nurse Kerri and she came over asap to insert a new one. 




Tuesday, May 26, 2009

More visitors!

Today Annabel had some more visitors who held her all day long.

Her cousin Stephanie

 


Her cousin Leah

 
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Hiccups

My mom swears that a piece of paper or thread on the forehead cures the hiccups. I gave it a shot and sure enough, IT WORKED!

 
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Thinking

 
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