Tuesday, July 20, 2010
Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
The moon never beams without bringing me dreams of the beautiful Annabel Leigh
Join Team Annabel on Facebook
About Annabel
Our beautiful daughter Annabel was diagnosed with Trisomy 18 (Edwards Syndrome) 4 days after her birth. By no means has this been easy. We've had to say "goodbye" to the life we imagined with our first child while accepting the reality that the time with our daughter will be far too short. Despite it all, we love our little angel more than words can describe and our goal is to provide her with comfort and love and appreciate every moment we can spend with her.
Thank you for visiting her site and please continue to keep her in your thoughts and prayers.
Thank you for visiting her site and please continue to keep her in your thoughts and prayers.
Contact
Background on Trisomy 18
Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy.
Unlike Down syndrome, which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. 50% of babies who are carried to term will be stillborn, with baby boys having higher stillbirth rate than baby girls.
At birth, intensive care admissions in Neonatal units are most common for infants with Trisomy 18. Again, baby boys will experience higher mortality rates in this neonatal period than baby girls, although those with higher birth weights do better across all categories.
Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community. A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independantly without assisted caregiving.
-www.trisomy18.org
Followers
Annabel's friends
awwww baby annabel!!!! even with a messy face u still look beautiful!! u lookin soo grown the way u sittin in ur big girl chair nd smiling showin off ur chunky legs! i love it! keep growing baby..were sooo proud of u!!!!
ReplyDeleteI LOVE U FOREVERR!!!!!! =)
Love these pictures!! They are so cute!! Hope to see you Friday Annabel. You are sure looking healthy with all of the extra weight. Keep it up sweetie!!
ReplyDeleteLove,Meemaw and Pawpaw
Awwwwww, little Annabel!! You look so pretty! Even with baby food all over that cute little face of yours!! Love you!
ReplyDeleteAwwww, look at her, she looks so happy! Never fails, I'm all smiles when I see new pics, love it!
ReplyDeletexoxo,
Lyla's mom
What a pretty smile! I get the same way when I eat anything with butternut squash in it. Way to go little annabel!
ReplyDelete