Annabel Leigh Villadiego: Stinky Stands!

Wednesday, April 6, 2011

Stinky Stands!

Stinky tried her stander today while wearing her AFOs and her new shoes. She did great! She really seemed to enjoy seeing everything from such a different perspective! The plan is to start slowly: she will spend just ten minutes in the stander each day. We will meet with the therapist in a couple of weeks for a progress report/therapy session.

The photos below show just how big the actual stander is...it makes Stinky look extra tiny! The second photo shows Mom and Stinky holding hands while the therapists check out the equipment. And for the last pic, look how happy Stinky looks-playing with her piano while standing, yay!

9 comments:

CynPolApril 6, 2011 at 4:44 PM
Whoa...Stinking standing?? I just can't believe what I am seeing!!That is wonderful!! Look at how happy she seems to be.Stinky we are so proud of you!You are just doing more and more. We love you precious girl!
Love, Meemaw and Pawpaw
ReplyDelete
Replies
CathyApril 6, 2011 at 4:54 PM
Yea. she looks so happy. I love her piggytails. Thank you for sharing these pics.
ReplyDelete
Replies
CarrieApril 6, 2011 at 5:07 PM
That's wonderful! She does look tiny in it, but happy.
ReplyDelete
Replies
UnknownApril 6, 2011 at 5:11 PM
HOO-RAY!!!! How exciting and wonderful! :) So proud of you Stinky! Love the piggytails too! She reminds me of "Boo" from Monster's Inc! hehehe So cute! xoxo
ReplyDelete
Replies
LisaApril 6, 2011 at 6:41 PM
WOW WEE!!! I am so excited for Miss Annabel!! Right before your big birthday too!! Way to grow big girl!!
ReplyDelete
Replies
AlbieApril 6, 2011 at 7:57 PM
This is just awesome!
ReplyDelete
Replies
LisaApril 7, 2011 at 6:50 AM
Stinky we are so proud of you! I hope I can stand like you too one day. Love your pigtail and bows! Hugs, Lilly
ReplyDelete
Replies
AnonymousApril 11, 2011 at 9:27 PM
These pics are great. She's such a cute kid!
ReplyDelete
Replies
i said someday....April 13, 2011 at 3:41 PM
Oh, Stinky (found out first hand this weekend where you got that nickname! haha), you're just getting so big!!
You need to have your mama post pictures of the 80's party!!
Can't wait to see you for your party!!
xoxoxo
ReplyDelete
Replies

Add comment

About Annabel

Our beautiful daughter Annabel was diagnosed with Trisomy 18 (Edwards Syndrome) 4 days after her birth. By no means has this been easy. We've had to say "goodbye" to the life we imagined with our first child while accepting the reality that the time with our daughter will be far too short. Despite it all, we love our little angel more than words can describe and our goal is to provide her with comfort and love and appreciate every moment we can spend with her.

Thank you for visiting her site and please continue to keep her in your thoughts and prayers.

Background on Trisomy 18

Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy.

Unlike Down syndrome, which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. 50% of babies who are carried to term will be stillborn, with baby boys having higher stillbirth rate than baby girls.

At birth, intensive care admissions in Neonatal units are most common for infants with Trisomy 18. Again, baby boys will experience higher mortality rates in this neonatal period than baby girls, although those with higher birth weights do better across all categories.

Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community. A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independantly without assisted caregiving.

-www.trisomy18.org

Annabel Leigh Villadiego

Wednesday, April 6, 2011

Stinky Stands!

9 comments:

Join Team Annabel on Facebook

About Annabel

Contact

Background on Trisomy 18

Followers

Annabel's friends

Resources

Blog Archive